So the new baby has arrived, everything according to plan and in the end glad to be in hospital, we’re all different hey. Lucky to have that safety net.
Talking about planning one of my siblings is just about to join a pottery class. They went to one before but mid term the tutor died so the class ended without finishing the work.
Yesterday’s family zoom was all about sorting out affairs. A tough week with pain, another confidence shattering fall and turning to planning for when there are more not so great days. Focusing on what matters to them. On one of those worst days I suspect they would have agreed to anything but fortunately that’s not how we work. The contrast in future planning between two families couldn’t be greater.
There’s a gulf of a disconnect in one minute talking about a teacher suddenly dropping down dead and yet at the same time thinking that some how it won’t happen to us. I’ve written before about how we’ve sorted out ours (see link if you want to know more https://www.gov.uk/power-of-attorney , also https://www.dyingmatters.org/ has some great resources). The silence in the zoom room! you could hear a pin drop.
My sister in law was saying about how she thinks she’s got about another ten years so she should sort out her craft room, we laugh as she has been saying this for the last ten years! Obviously none of us know what’s round the corner so who knows.
Dad got seriously into getting rid of stuff as he got older, thank goodness because he had stuff! I contrast this with the person with their lifes goods in a shopping trolley.
So anyway the new class, with a different teacher starts soon and they’re thinking about wood turning and pyrography.
There’s been snow and hail and they dressed up warmly, a Mum and baby koala in the garden.
One of my nephews students gave the children a toy brain so they were excited to show us. I think it’s part of an awareness thing but sometimes you miss things when people try to talk over people in their excitement. I tried to look it up. I’m guessing it’s something to do with Aboriginal and Torres Strait Islanders having 3-5 times higher rates of dementia than the general Australian population and it makes me wonder about a link between racism and dementia. I wonder if this gets confused with the forgetfulness that comes with psychological trauma.
Some of the children are back at school. This week has been a tough week with misogyny. Our children having to fight to be heard, boys talking over, belittling voice. Going from bottom set maths due to preconceived ideas to top set once ability was recognised, up a grade in teacher assessed prediction once the reality of work grades where highlighted. The children fought for those rights. Nothing has changed. Parents got involved and now we have been promised action. We’ll see. We celebrated our children’s achievements but why should they have to fight? 93% this week.
I’m reminded of a Mum from our community group how the wounds on her daughters legs weren’t even seen, screams of pain unheard – negrableism as Dr Kinouani has described it. Who herself experienced so much pain this week. That too perhaps unseen. As my colleague said “Same shit different wrapper”
There is a go fund me page to help some deal with daily crap https://www.gofundme.com/f/rtntherapyfund?utm_campaign=p_lico+share-sheet+spider1v&utm_medium=copy_link&utm_source=customer
This week I’ve been reminded yet again how sitting in silence allows the space for disclosure, allows time to think, how silence can be a special gift, how being with is sometimes enough. Followed by action. However some silence just the everyday racism. I reflect on my ableism with my cousin.
I experienced white amnesia yesterday. I arrived at the group having forgotten all about the article. Wrapped up in my own thoughts. Quickly remembered as black people did the work, a common pattern. We talked about the willful blindness about racism. How it’s experienced when we don’t fit the perception, how it isn’t experienced by those who are racialised as white. We talked again of the compounding factors. We talked about evolving racism in the digital age – see link https://guides.library.illinois.edu/socialmediaaccessibility/digitalblackface
We talked about what it feels like to work for an organisation where you’re left with embarrassment at denial, defensiveness and deflection. How when you cannot speak up “it’s a lot” (that has seriously got to be the understatement of the year!)
I was looking through twitter and Nurses were complaining about stealing each others pens and it made me think of how some stealing is in plain sight but also how there are vastly different concerns. Some life and death.
We talked about the need for a welfare clause for those who are working in diversity and inclusion. How addressing these things needs to be resource led. We talk about how it feels to be undermined. “It’s a lot”.
Do people listen to hear? I consider myself in the mirror. Was my solidarity aligning to whiteness? People expressed shock at how some people are SO FAR BEHIND and I wonder where I am in that, because you don’t know what you don’t know. We wonder about the opportunities for space when black employees have to sit through protestation and denial, we wonder about the silent bystanders? Are they now speaking up?
Sage is the organiser of this fundraiser, they use the term “charitable industrial complex” and I’ve heard on several different occasions from different sources how this complex sector is by far the worst at addressing discrimination. Largely because it’s full of “do gooders” and I wonder about the harm we perpetuate. Think about the continuous gaslighting sign that still hangs above that neglected garden, how my complaint went unanswered, deflected, my tweet unacknowledged. Just the usual assumed incompetence?
We were thinking about how “I can’t breathe” is used a lot, how that prone immobilisation isn’t just physical. A fight to even be seen as victims. How people are told don’t try to fight on racism, use something else, gender, disability. How many prosecutions on the grounds of racism have their been in the UK? https://www.citizensadvice.org.uk/law-and-courts/discrimination/protected-characteristics/race-discrimination/
How many prosecutions will there likely be on the grounds of disability after governmental failures to protect? White solidarity getting in the way of voices being heard or advocating for the person, aligning instead with the organisation.
I was trying to connect with my body during the yoga session, what a wonderful teacher Navreet is. I was aware of that pain under my ribs and how my bowel feels swollen and it got me thinking about the consequences of chronic inflammation. When I was doing the racial trauma course I experienced physical pain in all the regions of my body that have been associated with racialised bodies. I’m left trying to make sense of this and that. Meanwhile GP’s are under attack when the attack should be elsewhere, who funds the training and this vital service? Divide and rule has always been used.
There’s a campaign to stop governments deleting messages integral to the workings of government. Colonialism hides evidence, destroys papers, prepends things didn’t happen when they did, is that what happened with my complaint?
Apparently there’s a protest on Monday about the safe navigation at Brightlingsea.
We talked about slave codes, how poor white labourers were co opted into white solidarity against black people. It makes we reflect on that. My cousin working in the houses of parliament like our Grandad did, perhaps in a some what different role. How some things stay the same. We had a cabinet during our childhood, it was made of off cuts from wood used in parliament. Some peoples stealing having great consequence than others. It makes me reflect on an article I read about professional curiosity.
We considered how disability is a personnel issue. How there is entrenched position and a burn out culture. Some days I feel burnt out. It’s hard to give yourself space when you’ve been raised as a work horse. This week I sat on the beach. It felt weird to stop, makes you think of the million and one things to do, hard to switch off. Can we afford to have some lives matter, some not?
State assisted death is being debated just as it is in the sad room https://www.ica.art/exhibitions/war-inna-babylon
We reflected on how the promise of the after life for some is around no disability and heard how when disability is a part of who you are, this is so offensive so please don’t without care and thought pray for those who live with disability it isn’t always welcomed. Being neither a curse or special blessing it just sometimes is. It makes me wonder about how fatigue is just seen as normal for some. Sometimes more than others, sometimes the same I used to learn from the people I met living with chronic disease. As it’s been said before disability is about environment. Makes me think about the tools we need to do a job. We were talking about how uniscans only take you so far, how they aren’t any good for where people actually want to walk, a reoccurring theme like others. I’ve seen abandoned equipment in the street and it makes me wonder about those who cannot afford a wheelchair or a bath seat, a mobility scooter, I’ve sat with someone who was experiencing shame about this. This isn’t their shame, it’s the company who employed them, and our so called safety net. What happens then? Some have called this requirement to buy our own medical equipment a disability tax. Especially when that £20 each week is withdrawn. Too many wasted medicines and too much lost equipment assist in that divide and rule, perhaps that could be different? Some people over medicated, some still under hard to get it just right. An ongoing issue.
Just as I was writing that I got a notification….”in particular, we know from studies testing the vaccines that although they work very well, they do not completely stop people getting the virus, or getting it again. We also know that some people can get the virus again even if they have antibodies”. Please do not assume you cannot get covid-19 again…which begs the question about social distancing in schools and the chances of long covid, the protections for people with disabilities…why are we revisiting this old place? No doubt the next time in court for some. Perhaps I’m not up to date.
We talking about forest school and picking battles, sometimes it’s too much. Sad that the form filling there too gets in the way of children’s connection to nature when we know that’s a vital way to wellbeing.
We had crumble today, made with apples that a neighbour left outside their property, free surplus for others to enjoy. I need to have a think what I can re gift in return…










